Saturday, October 13, 2007

THE CROCK OF CHRONIC LYME DISEASE

My apologies for not writing in so long. There are many things I read that I want to blog about, but then I watch television.

I want to get right back on the train with a round of applause for one of the best articles I have ever read in the New England Journal of Medicine. Their critical appraisal of “Chronic Lyme Disease” (and I LOVE the quote marks) was short and sweet, and there are so many takeaway messages.

The first, of course, is that there is NO good evidence of any such entity in the medical lexicon. What I mean to say is, it is NOT A RECOGNIZED INFECTIOUS DISEASE! Here’s a quote from the Infectious Disease Society of America website:

an extensive review of scientifically rigorous studies and papers available to date, has determined that there is no convincing biologic evidence to support a diagnosis of chronic Lyme disease after completion of the recommended treatment

But don’t tell the chowderheads at so-called “support groups” like this one. They are all over the country (even in places where Lyme is NOT endemic), composed of rich people, and have NOTHING BETTER TO DO but use the internet to obsess over their pathetic lives.

Apparently, for the believers, you do not even need to have a positive antibody test against Borrelia burgdorferi to make the diagnosis., because it might not be valid unless done by a “specialty laboratory”, which is, of course, a scam, since they are performing tests that are not even validated or supported by the FDA, and are using criteria that are based only on their own fantasy values.

This is the second takeaway message: that there’s a sucker born every minute. In this case, the sucker is the poor sap (or self-important “expert” patient) who seeks out the “Chronic Lyme specialist” (laugh heartily, men-of-science) for weeks, months, even YEARS of chronic antibiotic therapy which is proven to do NOTHING except cause complications of side effects and catheter infections (one resulting in DEATH, according to the article).

The article goes on to discount every theory that the “Chronic Lyme” fraudsters purport. But the most disturbing part of the article comes near the end. Here’s a quote:

The attorney general of Connecticut has begun an unprecedented antitrust investigation of the Infectious Diseases Society of America, which issued treatment guidelines for Lyme disease that do not support open-ended antibiotic treatment regimens

An attorney general is actually pursuing legal action against an academic society because they disagree with his unscientific view of a bogus clinical entity that is disproved by science. Saying I am shocked and nauseated does not begin to describe my true feelings. How is this possible in 2007? Why are lawyers pretending to be scientists??? Does this guy own a bunch of these “specialty” clinics or something?

That’s the final takeaway message: science is now being dictated to by people who have absolutely no idea what they’re talking about, and aren’t interested in real research.

Thank you Henry M. Feder, Jr., MD er al, and the Ad Hoc International Lyme Disease Group for the article of the year!!

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YOU ARE A HORRIBLE DOCTOR!!! BECAUSE OF DOCTORS JUST LIKE YOU IS EXACTLY WHY I HAVE CHRONIC LYME TODAY!!! I TOLD THE MD'S I HAD THE RASH.. DID THEY TREAT ME.. NO!!! INSTEAD THE UN-ACCURATE LYME TESTS THAT YOU GUYS USE SAID I DIDN'T HAVE IT WHEN I DID AND I DO!!! SO I'VE GONE 17 YEARS WITHOUT TREATMENT BOUNCING FROM DOCTOR TO DOCTOR TRYING TO GET PROPERLY DIAGNOSED.. NOW I HAVE OTHER MEDICAL ISSUES LIKE CREST SYNDROME THAT DEVELOPED BECAUSE I'VE GONE UNTREATED FOR SO LONG!!! YOU GUYS ARE A PATHETIC PIECES OF CRAP AND WHAT YOU ARE DOING IS A SIN!!!! SHAME ON YOU! YOU TAKE AN OATH TO DO NO HARM!!! YOU ARE GOING TO ROT IN HELL! AND I TOO HOPE YOU GET BIT BY THESE TICKS AND FIND NO SUCH TREATMENT AS I AND THOUSANDS UPON THOUSANDS OF OTHER PEOPLE SUFFER THROUGH!

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YOU ARE A HORRIBLE DOCTOR!!! BECAUSE OF DOCTORS JUST LIKE YOU IS EXACTLY WHY I HAVE CHRONIC LYME TODAY!!! I TOLD THE MD'S I HAD THE RASH.. DID THEY TREAT ME.. NO!!! INSTEAD THE UN-ACCURATE LYME TESTS THAT YOU GUYS USE SAID I DIDN'T HAVE IT WHEN I DID AND I DO!!! SO I'VE GONE 17 YEARS WITHOUT TREATMENT BOUNCING FROM DOCTOR TO DOCTOR TRYING TO GET PROPERLY DIAGNOSED.. NOW I HAVE OTHER MEDICAL ISSUES LIKE CREST SYNDROME THAT DEVELOPED BECAUSE I'VE GONE UNTREATED FOR SO LONG!!! YOU GUYS ARE A PATHETIC PIECES OF CRAP AND WHAT YOU ARE DOING IS A SIN!!!! SHAME ON YOU! YOU TAKE AN OATH TO DO NO HARM!!! YOU ARE GOING TO ROT IN HELL! AND I TOO HOPE YOU GET BIT BY THESE TICKS AND FIND NO SUCH TREATMENT AS I AND THOUSANDS UPON THOUSANDS OF OTHER PEOPLE SUFFER THROUGH!

Binoy Perumbral said...

I find this controversy pathetic.

The fact is, testing is poor. There is ample evidence to support this. In addition, symptoms are more prominent in the early stages (up to one yearish) - the rash, fever, chills, swollen knee, bell's palsy - clear signs.

If you wait to see a doctor when symptoms become more general, and do a blood test, it may come up negative. This is happening alot, and for doctors to pretend it's not is worse than arrogance - it's stupidity.

Lastly, alot of people are complaining about still being sick after six weeks of treatment, and alot of people take time to find the right treatment, which could exceed the six week period that is recommended. There's way too many people reporting improved results after a year or a few years of therapy for this to be superfluous. Finally, considering the nature of poor testing and the difficulty of diagnosis and the apparently high degree of treatment failure according to CDC recommended treatment, there should be sympathy and an open mind. You don't see people acting this way about chickenpox, do you?

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I'd like to punch this fucking asshole right in his fucking face. I'm bedridden because of this insidious infection. I hope you get it. I hope u feel the torture. U fucking piece of fucking human trash. Who the fuck do u think u are to make such a fuckin statement. Fuckin degenerate. Get sum facts . and yeah I said fuck. Fuck u .

Penny Cooper said...

Unbelievable...How ignorant can a person be?...He claims to know so much about Lyme disease, but is completely clueless...Does he realize how stupid he sounds as he fancies himself to be a Lyme guru...I would recommend that he zip it until he knows what he's talking about...Yes, he does deserve an endless lifetime of severe and chronic lyme...How can anyone be so close minded about something that they have never walked a day, much less a minute, with? Can we please just move all the mean and/or clueless people to another planet?

MrApplewine said...

I think it is a scam. I tried taking four antibiotics for 6 months based on an igenx test and multiple doctors though. I was skeptical, but figured that treatment would be the test and I was low on options. This was stupid because this was experimenting on my body. I developed chronic geographic tongue, eczema (microbiome damage?) and some kind of chronic nerve dysfunction that feels like cold wet water sensations all over and burning or stinging all over my body. I finally quit after realizing that the test was not tested and the cure didn't cure anybody. This may be coincidence. I don't know, but the lesson I learned is that antibiotics are not something to experiment with when using multiple unusual ones for long term. If you just want to take it for normal period and just one then it is unlikely to heart much. Don't experiment. The condition I have is myofascial pain syndrome, back, neck, jaw temple etc. That is what I was trying to fix and thought a chronic infection may be the cause. People online said lyme disease and igenx and the doctor my massage therapist refereed me to was one of these bad doctors, so all I had to do was ask for the test and that set me on the path to finding an "LLMD" which then treated me.

Anonymous said...

Sadly, this is madness is affecting entire families now and kids are being allowed to stay home from school for years and years - ruining their lives and futures. Kids who appear perfectly healthy and who are capable of doing work when pushed by outsiders - but seemingly unable without outside intervention. These kids are doing what any kids would do - playing hooky cause they can get away with it. They are too young to realize that it isn't worth it. The parents,though - what the heck?

Anonymous said...

The complex of issues being diagnosed as CLD is clearly not accepted by the scientific community, which is perhaps closed minded. The suffering of those given this diagnosis is palpable. Some of those giving the diagnosis may have questionable motives. How then to deprogram those who have been duped and get them the help they need?

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